Lets do it Again!

I finally have some details for you...

On July 18th I start the trail study. I will need to be downtown at Karmanos for 10 hours. They need to moniter my progress. Matt is going with me. The next day, Tuesday I need to go back for 5 hours. Don't know what they are going to do, but I will be there. Then the following Monday, July 25th I need to go back for 5 hours again. After that it will be just on Mondays for about 2-3 hours.

There is no end date to the medication. As long as I can tolerate it and it is doing some good I can stay on the drug. They have me schdule for another CatScan later in August along with another eye exam.

The waiting is the hardest. They don't know if I will have any side effects because on six othe people have had this drug. Kinda of scarey.

Everybody is doing good here at the house. We still need prayers for my brother-in-law he goes in for surgery today. Has infection in his jaw. Not doing good, but he is a fighter..

Thats all I know for now. I promise to keep you posted on how I am tolerating the drug. Wish me luck...

I am in it to win it.....

Love you,
Julie

Back by Popular Demand

Hello,

A few people keep asking me if I have my blog up and running. They have asked me if I could so they can keep better tabs on me. So I guess I will try it again.

So here it goes.. This is what is happening...

Went to a Karmanos downtown to a clinical study called Phase I. It is a program with experimental drugs and you have to meet all the criteria to fit in the program. We were getting ready to sign the forms, when the doctor came back from looking over my last CAT SCAN. He found a tumor on my lower spine. So off to get a MRI and radiation treatments. I need 10 treatments and then I have to wait 2 weeks then we can contact the Phase I doctors and see where we go from there.

So Tuesday I started my first of the ten days of radiation. All is good. Just a little bit tired. So as soon I find out more I will be posting the results.

My patio is in and the landscape is almost finished. I just cant wait until it is done. When it gets done I will post pictures.

The rest of the family is doing fine... Jacs working, Myles working... Its a good thing.. Hopefully Matt will be back on days soon.

Thanks for the prayers, cards and love.

My new saying for this next journey is

I AM IN IT TO WIN IT! (with a little help from my family and friends)
Love ya,
Julie

HAPPY NEW YEAR....2010

Happy New Year to Everyone who is still reading... This is our new edition to our family. Matt's nephew Brandon's daughter Ella. She is sooo cute. We enjoy seeing her every chance we can.

Santa Greg was good to his girls.

I can't believe it has been 2 years since this journey has begun... I also can't believe there are people still reading this blog. I haven't really been updating because things haven't changed much.

I am still going to Weisburg every 3 weeks to get treatments and still taking pills for two weeks. The doctor did decrease the pill intake to 3, because I couldn't handle 5 of them.. CAT SCANS are still every 3 months. My next one is scheduled for the end of the month. Hope everything stays the same. The last two have been good. So thanks for all the prayers and concerns. I did get the Doctor to see me only every 6 weeks, instead of every 3. Thank God for that. It was getting old seeing him so often. I almost got him where I want him. I hate breaking in a new doctor. He really likes to follow the rules. And you know me I hate following the rules.

Well December has come and gone. We had a busy month.... A wine tasting party. That was a blast. Thanks to my cousin Matt... he got everyone a little tipsy... but we learned alot and laughed alot. Myles turned 18 years old.. He celebrated his birthday with his uncles and grandmother. Christmas was at our house. Food was great thanks to Matt. I am sure glad he can cook. We played a new gift exchange game. We all had a blast. So I can say that I am done with parties for a while.

It has been great having Jac home for the holidays. She has been a great help. She celebrated the New Year in Chicago with her friends. Myles had to work. Matt and I babysat for my niece. We celebrated with friends... (we were teased about being grandparents... I can sure wait for that. )

Well life is good. Nothing really to write about. I promise if any big things come up I will keep ya posted.

Remember to

LIVE LOVE LAUGH OFTEN>>>>

Julie

Summer is Over!!!!

September 9. 2009

Well I am back to work. Geting to know all the new kids is a challenge, but it is fun. Meet with my NEW doctor a couple of weeks ago. I think I will like him and his nurse. For now on all my treatments and visits will be done at Weisberg Center. I am truely happy about that.
I went for my first doctor/chemo appointment. Guess What I was done in 2 hours and 15 minutes. Worlds Record..... The CAT-SCAN showed that there is fluid around the upper right lung. I will need to do CAT-SCANS every month now to make sure the fluid doesn't get bigger. For now I can stay on the maintence Chemo plan and hopefully it stays the same.

So keep the prayers coming...

Jac is back at school completing her last year at MSU.... She graduates in May... YEAH>
She is working on campus in the advertising office there. Her new apartment is beautiful. She just loves it there. Her new address is 314 MAC apt. 304 E. Lansing MI 48823, She enjoys getting mail. So drop her line when you can.

Myles is also completing his last year at DeLaSalle. Yes I have two kids graduating this year. But it is ALL ABOUT MYLES this Year!!!!! He is working still at the boat docks and playing house hockey for a former coach. Life is good for Myles.

Thanks to our wonderful friend Jon he did Myles's graduation pictures. They are so cool... You will just have to wait and see them... Save the date for his party: Friday, June 25th!!


Matt is working and trying to get more fishing in whenever he can. He has been so supportive with everything. I thank God everyday for him.

Everything else is the same. Thanks to everyone who is still reading the blog.. Whenever I get more news I will post it for you to continue reading.

Remember
LIVE LOVE LAUGH OFTEN
Julie

Status Quo

Hello to Everyone who is still reading my blog,





As I keep running into people they say they are reading my blog. I haven't wrote anything because I didn't think people were still catching up on me.. I know you all care and pray for me, so I will update you...





NOTHING HAS CHANGED!! Everything is the same... CAT-SCAN came back the same, which is a good thing. So I will continue with Chemo every 3rd week.. and my pills. Side effects are minimum. I will be getting a new doctor. My doctor is leaving the practice to go to Georgia. I met my new doctor at the end of the month. Hopefully he can put up with me.





Jac is still in California. She is doing a NON PAID internship in advertising. She says she will be home around Aug. 7th. I sure do miss her. Myles is still working at the boat dock and playing hockey. Matt is working and trying to get on the boat as much as we can. This weather stinks...

Thanks to everyone who helped with the RELAY For LIFE WALK.. I really appreciate all that you did.. Look for new events to help me raise money for the walk.. (Road Rally, Euchre party and a purse party are just a few of the events I hope to do).

My trip with the girls to Napa Valley was GREAT!!! We had a super time. Thanks to my Yellow Rose Friends for making it a time to remember. You guys are the best.






Keep the prayers coming for my brother-in-law Greg. His throat cancer came back. He sure is a fighter. He is home resting and trying to get his strength up. My mother in-law is home from rehab, she fell and broke her arm.. What a long recovery she had.
We have been busy keeping the family togther. But other than that life is pretty much the same.. I will be busy for the next few eeks: going to Florida with Jenny and her sisters then up north with my family to celebrate my moms birthday, a baby shower, birthday parties and teaching summer school.. But that is it.

Enjoy the summer and keep the prayers coming

As always....
LIVE LOVE And LAUGH OFTEN

JULIE

As I get more news I will keep you updated.

Doing a Little Dance!

Hello,

Just a quick update for those who are still keeping up with me. The doctor said everything looks good. The CAT-SCAN hasn't changed. I start my maintenance Chemo on the 15th of May. He says I shouldn't have any side effects. We will see. I feel great and I am doing good.

I leave for a much needed vacation this Wednesday. Heading to California with my girlie friends... I can't wait.

I wanted to say thank-you to all that have kept me in your prayers. I couldn't have made it this far with out your love and support.

Everything on the home front is going smooth. Myles is leaving for Boston with his cousin and uncle for quick vacation. Jac comes home from college this week. YEAH! Another year done. WOW! Matt is hunting and fishing and enjoying the outdoor life... The family room is finally done... I just love it...

LIFE IS GOOD!!!

Thanks to my family for putting up with me. I know this year has been hard on all of you too, but we will survive.

I will update you all with some pictures of my trip and how the maintence chemo went at the end of the month.

Prayers Needed:
Lisa Perkins for her loss of her father
Paulette who has had heart surgery. (she just got done fighting cancer now this)
A teacher at school who is going through some rough medical times..

UPCOMING DATES:
EUCHRE FUND RAISER MAY 30TH. LET ME KNOW IF YOU WANT TO PLAY
BAGS FOR SALE FOR THE RELAY FOR LIFE WALK $10.00 (Mom you forgot yours)
Relay for Walk June 13th for any one who wants to walk with (times to come).

Have to go and finish packing...
Remember to

LIVE LOVE LAUGH
Julie

March 18, 2009 Sunshiny Days are Coming Soon!

Just got back from the doctors. My last BIG CHEMO is this Friday..... YEAH!!!!
My next CAT-SCAN is scheduled for Easter week. Along with a doctors appointment and my first round of maintance chemo. Maintance chemo will take place every 3 weeks, which will be like a mini-chemo. The infusion will last only 10 minutes. Then I will take 5 pills a day for 2 weeks. (just like I am doing now). So it is good news, as long as my CAT-SCAN stays the same. So power of prayer is still needed.... Keep it up..I need you guys..

Well enough about me....
Myles is done with hockey and is waiting for the boat docks to re-open for the season. He has joined a gym to keep him in shape. Spring hockey starts in mid-April. He sure does miss playing. Thank god Devon is here to keep Myles busy. (remember he is our boarder we have every other week). Myles will be going on a spiritual retreat next week. They say all the boys come home enjoying their experience they had there. Other then that Myles is good..

Jac just got over being sick. She was home for a week. Then she worked her whole spring break up at school. She is still looking for a paid internship. Hopefully something will come soon. She has counted the days until school is done and where she can come home and be with us!!!

Matt is plugging along. Getting ready for the boating season to start. But he has alot of boat maintance to do.

I will be doing the Relay for Life Walk again this year. As soon as I get more info on it I will pass it along to you. I do know for sure I will be selling the bags again. They are the ones you decorated and we used at the night walk last year. The cost is $10. So as soon as I get the information I will post it.

That is all I know for now! Sorry it took me so long to post. But I am swamped at work and at home. Keep the prayers coming....

Remember to
LIVE.... LOVE....LAUGH
Julie

P>S> I am hoping to make it to the new Netties with as many friends who want to go to celebrate my last BIG ROUND OF CHEMO..... I am looking at April 25th!! What do you think... Blog me back and let me know if you are in.... Enjoy